Advocating for Scientific Breakthroughs in IBD
Today’s Insights IBD is dedicated to advancing scientific breakthroughs and implementing innovative healthcare solutions. By connecting communities and stakeholders, I aim to amplify the impact of shared knowledge and strenghten collaboration.
With the alarming rise in IBD cases worldwide, it’s crucial to move beyond discussions and take decisive action on a global scale. As a patient advocate, I am deeply concerned about the suffering of patients. Living with IBD is incredibly challenging, as it brings both physical and mental burdens. Therefore, I am focusing on two key questions: What steps can we take right now to improve patient care globally? And how can we leverage existing data to optimize research and drive better patient outcomes?
I aim to share valuable knowledge inspired by the IBD community, while collaborating with healthcare professionals.
Founder
I’m Raihaneh, living in the Netherlands, and the founder of Today’s Insights IBD. I am a PhD candidate whose research will focus on improving drug discovery and development from an innovation management perspective, with a particular emphasis on identifying novel ways to prevent promising scientific discoveries from failing to translate into successful therapies. I hold a Master’s degree in Management, specializing in Strategy & Innovation, and a Bachelor’s degree in Social Work & Services. My professional background is diverse, encompassing experience in both the for-profit and nonprofit sectors, including strategic planning, business consultancy, marketing, digital strategies and board participation.
In 2020, I was diagnosed with inflammatory bowel disease, a life-altering event that opened my eyes to the many challenges patients face. This inspired me to become an active patient advocate. In my role as a patient representative, I have contributed to advancing IBD research, helping to bridge the gap between patients and the scientific community. I am also a Board member of Propel a Cure for Crohn’s Disease, a nonprofit organization committed to funding transformative early-stage research.
My advocacy focuses on driving faster, results-driven progress in IBD healthcare, with primary interests in:
• New medical discoveries and treatments by strengthening innovative knowledge exchange across healthcare ecosystems
• Awareness of bile acids and bile acid malabsorption as important therapeutic targets across gastrointestinal conditions
• Optimizing current IBD treatment by supporting the role of evidence-based nutrition alongside medication
If you are interested in collaborating with me, or my consultancy services, please send an email to info@todaysinsightsibd.com.